Since I last touched base, we have all come down with the dreaded viral/flu/ear infection/sinus infection/pneumonia/bladder infection. You name it, we've had it at the Gillespie infirmary!
So now what's new with ME...
I am en route to M.D. Anderson in Houston on Tuesday, April 14th for the week to see their eye specialist and oncology team that follows VHL. Wish me luck. They have some new ideas and possibly a new drug trial coming up soon.
This past week, I had a new prosthetic eye made. It was well overdue, as it has been 10 years and you are supposed to get a new one made every 4-6 years. I will be picking it up on Tuesday, after it gets painted and fired. This week I also saw an ocular specialist who deals with visually impaired patients. She gave me some tips on how to deal with my central vision loss, including improving the lighting in my home and software for my computer (this will allow me to blow things up HUGE and even make my computer talk).
Spring Break has been very uneventful... Seems we were one of the few families who stayed in town. We were glad however, since we were all sick! My son, Tyler, is looking forward to taking a late "Spring Break" as he is traveling to Dallas for an international soccer tournament this next week. He is so excited to play the teams from Europe and exchange jerseys. They even have an opening and closing ceremony, just like the Olympics!
Hoping that you all had a lovely spring break & wishing you a blessed Easter. Hopefully, some of you will bring the sunshine back with you from your warm-weather travels!
Love, Kim
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